Easier with Awareness

This lovely month of May is Prader-Willi Syndrome Awareness Month!  As I've been thinking about my part in spreading knowledge and fundraising, I've had my own thoughts about how people being aware of Sarah's Syndrome helps us.  So, I'm just going to share those thoughts of mine.

It's easier to be a parent of a child with Prader-Willi Syndrome when....

People like Emilee C. shoot me a quick text before an event at her house where there will be food.  These texts just simply state EXACTLY what will be served.  We are able to tell Sarah ahead of time what she can choose to eat.

Sarah 1 yr. old (drawn by Justin)

Jill W.'s of the world just jump in and start answering the never ending questions (that I've been answering all day long--11 yrs. really) when she's around.

Sarah 2 yrs. old

When the adults that Sarah tries to wrap up into giving her some type of food/treat not only say "talk to your mom" but add a little more help like:  "your food plan doesn't have that on it", "I heard your mom say no", "you already had one--no more", or how about a big old "no!"  (She listens to others better than me)

Sarah 2 1/2 yrs. old

I'm told I have more patience than he does by people like Gilbert J.  (If I hear it enough, somehow it makes me feel patient :)

Sarah 3 yrs. old

Mothers like Tasha B. teach their children how they can be a friend to other children with Special Needs.

Primary Teachers (at church) like Jake M. and Rick W. ask about bringing treats to class before it happens.  Also they help Sarah get along in the class with all those different personalities without involving us as parents....honestly so nice to not have to always be the problem solver.

Sarah 4 yrs. old

School Teachers like Mrs. Brown and Mrs. Merry have figured out how to use Classroom Fairies, Elf on the Shelf and the Easter Bunny to entice, encourage and make Sarah feel loved.

Sarah 5 yrs. old

I sit in my Mom's caregiver class and have another mother tell me she hates shaving her special need girl's legs and armpits as much as I do.

The Suzanne E.'s are willing to give Sarah her shots so I can leave over night with my hubby.

Sarah 6 yrs. old

Bishop Ginn will walk right down in the baptismal font and bend over backwards to make Sarah feel comfortable so her wish of being baptized can come true.

Young girls like Cristine E. will see past the many difference between her and Sarah and just realize they both have challenges, they can still be best of friends!

Sarah 7 yrs. old

People like Lisa T. have their own special need child but dedicate hours and hours to helping and supporting other parents and children across the nation with the same challenge.

Neighbors just smile or laugh when Sarah walks right into their house, yells down the street at them or thinks they speak Spanish even though they really don't.

Girls like Ellie B. are willing to hang out with my cute girl so I can take my other two children in peace to a party full of food and people.

Sarah 8 yrs. old

The bus drivers give you personal cell phone numbers just so you can try and prevent issues that arise in the early mornings.

Sarah 9 yrs. old

The Ben J.'s go one way down the circular halls at church so I can go the other and trap Sarah somehow and finally take her home.

Sarah 10 yrs. old

People like Jenny D. will let me call them and flip out about crazy expectation that a teacher has for this girl of mine.  Oh, and actually have real advice because her daughter has special needs too.

Friends like Holly B. send Sarah home with very large, very beautiful princess puzzles to keep her occupied.

Sarah 11 yrs. old, Spencer 9 yrs. old, Allison 4 yrs. old

Mothers like Jena S. set up play dates with their daughter and Sarah and make it successful by helping her daughter understand special needs

The Becky P.'s hide/put away food items when Sarah comes over.

They are Aware!

I've only mentioned a handful of people in our lives that are aware of us and aware of what Prader-Willi Syndrome is and how they can help.  We are just super grateful that there is support around us always!!!

Here's a little challenge...teach someone else what you know....help the awareness!